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A small selection of links.  No endorsements are implied and suggestions are welcome. See our Terms of Use.  
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If you spot any errors in these links, please contact us by email.


Selected Links

    Congenital Heart Disease (CoHD) links

  -  this page

    Screening & Pregnancy advice & support (Antenatal)

  -  on the support page

    UK Maternity Hospitals, NHS Direct etc. (Perinatal)

  -  on the support page

    Children & Adult Heart support & information (Postnatal)

  -  on the support page

    Bereavement support

  -  on the support page

    Nutrition & Health

  -  on the community page

    Heart Aware (for schools)

  -  a special page for schools


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Congenital Heart Disease

Please Note:  Parents who have just learned that their baby may have congenital heart disease (CoHD) often search the Web for information.  Often, this can produce more worry than reassurance. 

We are all individual and unique and only a specialist can provide a diagnosis specific to your baby. 
Refer to Detection and diagnosis of congenital heart disease.

U.K. CHD web sites
BBC Health Online - Heart Babies (article on "heart babies")
British Heart Foundation (see "heart health" > "heart conditions" > "Types of Congenital Heart Disease")
   Also see www.heartstats.org/datapage.asp?id=3388 (Congenital Heart Disease statistics,
2003)
"Congenital Heart disease" - the All-Party Parliamentary Group on Heart Disease (also see
All Party Parliamentary Group on Maternity)
Children's Heart Federation (information and links to groups in the UK concerned with children's heart conditions)
The NHS Gateway (UK & local information)    |   
NHS direct

Babyworld.co.uk - CHD page           |  iVillage.co.uk - pregnancy page  
Direct.gov: Parents: Having a baby  |  BBC: Parenting: Having a baby
Wellbeing.org.uk: Useful links 

Fixing Tiny Tickers: an online exhibition of a heart operation in the womb at the London Science Museum


International & US CHD web sites
The Congenital Heart Information Network, CHIN 
   (also see Defects/Syndromes | Professionals  | Counselling | Genetics)
Heart Encyclopedia (Cincinnati Children's Hospital, Heart Center) - Pediatric Congenital Anomalies (post-natal)
Children & Heart Disease (American Heart Org.: also see
Congenital Heart Disease)
US Medline: congenitalheartdisease
Congenital Heart Defects.com (a comprehensive CHD website)
Congenital Heart Disease Resource (some useful links, but no longer updated)

Baby Hearts Press, www.congenitalheartdefects.com  
Links: www.congenitalheartdefects.com/links.htm

CHD Ring: List All Sites on the Congenital Heart Disease Ring

CHD Central


CHD Diagrams & Fetal/Embryo Images &Pictures
How the heart works (award-winning diagrams & movies show congenital heart problems in a heart 'house')
Chicago Children's Hospital: Congenital Heart Disease
Fetal development overview (US Pregnancy Advice Site)
From sperm & egg to 6 weeks (from Make Way for Baby)
The Visible Embryo - all stages of development from conception to birth


Reference

Heartline Glossary  |  Fetal Heart Disease conditions  |  Wikipedia: Congenital_heart_disease

Scientific literature: 
Search Google Scholar (beta)

Other charities: 
Institute of Obstetrics and Gynaecology TrustBabyLifeline  |  BLISS  | 

UK Congenital Heart Disease Statistics

  UK Births (716,000 in 2004)

  UK Government Statistics

  Heart Statistics (BHF)

  www.heartstats.org

  Congenital Heart Disease (PDF, 2003)

  www.heartstats.org: CoHDstatistics.pdf


Heart Aware (a special page for schools)

Discover your amazing heart and find out more about heart disease


Links for echoUK

Tiny Tickers (Echo UK) listing on DIVIDE  |  echoUK (1078114) entry in the Charity Commission   |

 

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