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5.
Epic events and pictures from our archives (2000 -
2007)
News and Articles
Over the last 5
years we have provided 'hands-on' fetal heart scan
training in about 50 maternity hospitals
across the UK,
representing about 15% of UK births.
We
have also created and distributed hundreds of posters and CDs
to show how
to scan a baby's heart in the womb,
in a practical and
timely way, to improve detection
of heart disease before birth.
For more
information see our health
professionals pages.
1.
Emergency Ward Womb,
8th October 2006
An "in-utero"
fetal intervention is an
operation that is performed on a
baby whilst still in the womb.
The Sunday Times featured an article on
fetal operations in the womb
...
read the article online
Update on fetal interventions
(2003 - 2005)
The International
Fetal Medicine & Surgical
Society (IFMSS) celebrated its
25th annual conference in 2006 with a
special look back over more than
20 years of pioneering fetal
interventions.
In 2005, The 4th World
Congress in Pediatric Cardiology
also featured
the latest news on fetal cardiac interventions.
The
Children's
Heart Center, Linz celebrated its 10th anniversary in 2005 with an international conference on fetal
and pediatric cardiology,
featuring interventions & treatment on left-sided heart disease from
centres around the world.
In 2003, the first international conference dedicated to emerging fetal cardiac interventions was
held in Boston with representatives from major centres across the
world. One aim was to develop a protocol so that new techniques
can be applied consistently worldwide.
Memorandum: to UK
Parliament Select Committee on Health (June 2003):
Effective improvement in the national detection of congenital heart
disease at the 20-week scan
UK's first fetal pulmonary
valvotomy
(2002)
The UK's first successful
opening of a fetal pulmonary
valve in the womb was published
in the Lancet and featured in
the press and on BBC Radio 4's
TODAY programme. See the
extract of the Sunday Express
article, below.
This
also prompted the online exhibition
in the London Science Museum:
Fixing tiny tickers
Extract from
press articles
(24.3.2002)
Whilst still in the womb, Jamie, was diagnosed with a closing
heart valve, seriously affecting his heart development.
In the past, Jamie might have been
delivered at 29 weeks gestation as a premature baby,
barely strong enough to survive the necessary heart operation to
open his heart valve. However a new procedure could open
his pulmonary heart valve inside the womb, allowing
Jamie more time to continue to grow.
The new procedure was a success, allowing Jamie a further
5-6 weeks of vital growth before delivery.
During these vital weeks the heart almost doubles in size and so becomes
easier to operate on.
This was a UK first and the UK team were advised by the pioneering Austrian team.
When he was delivered at 35 weeks, Jamie was a
lot stronger and able to undergo a successful heart operation using
a "shunt" to improve blood circulation.
Update
(Feb. 2006):
Jamie is now an active 4 year
old and he is one of a growing
number of heart babies, who have
also been successfully treated
in the womb.
Link:
http://www.sciencemuseum.org.uk/antenna/tickers/121.asp
2.
Antenatal Screening for CHD around
Europe
Holland starts antenatal screening,
2006
The Dutch government began routine antenatal ultrasound
screening at 20 weeks for all women in 2006. Tiny Tickers has supplied
information on our "5 View" protocol to the
FMF Netherlands, so that
their sonographers can screen for congenital heart disease before
birth.
3.
Adult CoHD (GUCH) news:
Heart disease in pregnancy (16/2/2006)
More than 125,000 women in the UK with congenital heart disease
(CoHD) are
at serious risk during pregnancy, according to a
report from London hospitals. It is the second most common
cause of maternal death.
Women who are born with congenital heart disease should alert their
doctors when they decide to have children of their own, so that the
right care can be given.
Link to our
community pages, which include
information, on Grown Up Congenital Heart (GUCH), as
well as tips before, during and
after pregnancy.
There are over 150,000 adults in the UK over 16 years of age with
congenital heart disease (CoHD).
(source: BHF report, 2003)
Paul Youngson is raising money for GUCH by trading some unique
items:
http://money-for-old-rope.blogspot.com
Tim ONeill, in Oz, is raising money for
Heartkids Australia:
http://beatinghearts4kids.blogspot.com
4.
Jobs & Sponsored Training
JOBS! Experienced,
successful fundraisers/event
organisers wanted immediately (SW London).
Are you articulate,
self-motivated, web &
email-enabled, able to work
independently or in a team, able
to work from home as necessary,
with relevant experience,
demonstrable ability to create &
implement a fundraising plan?
If so, please
email your
details to
us
Sponsored Training
We can provide a 2-day sponsored training package to hospitals.
This can be part of a specific
event (e.g. as part of a
training package for new
obstetric ultrasound equipment),
or through a fundraising event
for that hospital.
Contact us if
you would you like to sponsor
Fetal Heart Scan Training for a
hospital?
("Item 11" at bottom of page)
5. Events & Pictures: 2000
- 2007
International Heart Awareness Day,
Feb. 14th every year!
St. Valentine's
Day remembers the many children & families affected by congenital heart disease.
Epic events in
2003-7
Half
Marathon, June 24th 2007
Trish ran in memory of her
nephew
Kieran on 24 June 2007 raising over
£300
The London 10K run, July 3rd 2005
Tony & Gary completed the London 10K run
in memory of the baby daughter of
close friends. They had great support and said, "It was really
enjoyable to be part of such an event ... We
have caught the running bug now so intend to do
some more runs and raise more money in the
future".
Link to the
London
10K run ...
The London Marathon, 17th
April 2005
Thank you to everyone who supported Christina, who ran in
memory of her brave little grand-daughter, Kacie,
who was born with Tetralogy of Fallot and raised
over £500.
Parachute Jump, August 6th
2005
Gary's first ever parachute
jump - solo - was in memory of his nephew, Ben, who
sadly died of a heart problem almost 2 years
ago.
Before
his jump, Gary said: "I'm
not that scared - yet! I'm really looking
forward to the jump and to raising some cash for
this fantastic cause. I can't think of a
better reason to jump out of a plane!"
And
afterwards: "The jump went really well - what a
buzz! I'm planning to do another one in the next
few weeks".
London Triathlon, 31
July - 1 August 2004
Congratulations to
Darrell who completed the
London Triathlon, 31st July
- 1st Aug. We would like
to thank everyone who sponsored
Darrell for their great
generosity.
London - Brighton, 20 June
2004
Congratulations to
David & Barbara who survived the
cycle from
London to Brighton on 20th June, in memory of their grandson
Dylan.
The Runners
Pictures of some of our Marathon runners, 2003 - 2005
The Shakespeare Half Marathon,
24th April 2005
Darryl
from Warwick completed the Half Marathon on
a course that starts and finishes in historic
Stratford-upon-Avon, raising £500.
(pictures: top right & bottom left)
The London Marathon, 13th April 2003
Rory finished the London Marathon in 3 hrs 29 mins 30 seconds
and raised over £1,100.
Rory set off at 09.47 and was looking good running over Tower
Bridge. He hit the wall at about 20 miles (where the body's
energy supplies are effectively exhausted), but carried on to
the Mall to finish at 13.16. Not quite as fast as Paula, but
an impressive finish none the less!
(picture: top left)
Caroline's marathon challenge in
2003
On May 25th 2003 Caroline and members of her family
completed the Plymouth half marathon.
The course included hills, so was more gruelling than
expected, but Caroline still clocked up a personal best
time of 1 hour 58 mins.
(picture: bottom right)
Why is Caroline running?
Caroline is a
nurse and mum of two. She has had a heart murmur caused
by a leaky mitral valve from birth and has always been encouraged
to keep fit & healthy.
A friend's little baby was born
in April 2003 with Aortic Stenosis & damaged valves.
She was very
poorly, but has received excellent care in hospital, including
a successful Ross procedure and inspired Caroline to run
to help other families in the future.
More Events and Milestones ... 2000 - 2002
Heart Stories & Songs, 2002
An amazing evening of traditional storytelling and music was held
on Nov. 29th , based on the theme of the heart: from heartless giants to Sid the snake's love affair.
Ladies lunch & Wine-tasting dinner, 2002
Our Ladies lunch & Wine-tasting Diner with Louis Jadot wines on
Nov. 14th & 19th raised £4,500; Two lucky raffle winners visited the
beautiful Louis Jadot region for a great weekend of wine-tasting.
Launch of the Training Initiative, 2001
On 25th October 2001, we launched
the Fetal Echo Training Initiative at a reception hosted by Lord Geraint at the House of Lords Terrace,
with superb views across the Thames. (This was featured in
The Times'
Court Circular).
Antenatal Screening on Radio4, 2001
On 9th October 2001, Women's Hour, Radio 4 broadcast an item on Antenatal Screening, involving medical advisors from the
charity and parents of heart babies.
Launch of the Charity, 2000
The charity was formed in 1999 and publicly launched on 5th July 2000
in London.
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